I suspect my last blog was a rather frustrated one, I have been feeling under the pressure with the fact that on Thursday it will be the twelve month anniversary of my diagnosis. The last year has without a doubt been the most challenging of my life and not always in the ways one imagines sickness to test a person.
I discussed how I’m feeling with my consultation during my clinical visit last week and I have to say he was tremendously understanding and supportive. I was beginning to think I was turning into a big wussy ball but he reassured me I had every right to feel as I do and expressed his belief that the team are exceedingly hopeful that this time we have the right ‘recipe’ of chemotherapy and immunosuppressant for me to ensure the transplant is a success. Whilst in clinic I mentioned in passing to my clinical nurse specialist my desire to have my PICC line removed and bless her, she offered to remove the offending item there and then! Not only did I walk out of clinic feeling a good deal happier, I was minus a tube too so now it’s just a case of waiting for the all-important Day 30+ chimerism test result, which may take another two weeks.
I don’t recall which day, but one day last week was a marvel post wise. £950 worth of cheques came through my letterbox and I can assure you for the last year it’s very much felt that the money has been rapidly moving in the opposite direction, nonstop. One cheque was a very generous donation towards my fundraising efforts for Anthony Nolan. The second cheque was a grant from Macmillan Cancer Support to assist with the cost of my trips to Barts. I have to attend Barts a minimum of twice a week and each visit costs me approximately £30, as I’m not working this cheque was a boon. I’ve promised myself that once I’m back on my feet financially I will make a single donation to cover this generous grant so that Macmillan can help another patient, who like me is wondering how to make ends meet without getting into debt. (I’m incredibly fortunate that my family have been extremely supportive through this process when and where possible)
Aster has been convalescing with me as she was neutered two weeks ago. However her recovery has been significantly speedier than mine. After a week she was eager to run, play and generally cause as much mayhem as possible. Thankfully, last Friday the vet gave her the all clear to cause trouble which also meant no more excuses not to train for the Yorkshire Three Peaks Challenge, for myself. Yesterday, we went for a 16km / 10 mile walk locally which was my first attempt at a ‘significant’ distance post-transplant. Where i live is a relatively flat area of the country so it’s not the best location for three peaks training however right now I desperately need to work on stamina and strength and confidence. Around the 11km point, I was secretly wishing taxis would randomly drive around the countryside, I pushed on to the end and I’m pleased to say I finished in one piece.
It feels wonderful to finally be preparing for the Three Peaks Challenge, post my 16km fairly flat walk yesterday a little daunting as well as exciting. The good news is that the team fundraising total is now £4346.24 for Anthony Nolan and £652 for Crohn’s & Colitis UK.
Even though I managed to walk 16km yesterday, I am still suffering from fatigue, silly things such as running up the stairs after the cat when he’s escaped or running down them to answer the phone, knock the stuffing out of me. That said I’m having less impromptu naps which is a good thing, as I often feel far worse after these. Otherwise I have a slightly dry throat and runny nose , both of which I need to keep an eye on as these things as my immune system is still exceptionally vulnerable even if I do have a normal neutrophil count.
Sponsor me now! Yorkshire 3 Peaks Challenge. All details can be found at: http://www.justgiving.com/Rachel-Jackson13